Children who are born extremely preterm are at risk for cognitive difficulties and disability. A common major morbidity for these infants is neurodevelopmental impairment (NDI). Susan R. Hintz, MD, MS Epi, focuses on changes in increased survival for infants born extremely preterm, modifications in resuscitation and perinatal neonatal care, as well as longer term, non-traditional NDI outcomes. She reviews studies that extend beyond 2 years of age, and how they could change the trajectory of NDI outcomes and future research. Dr. Hintz cites the importance of earlier interventions in the NICU, and better preparing families with transition-to-home care programs and excellent referral and follow-up. She concludes with quality improvement opportunities across the provider network, and discusses the importance of integrating health-related quality of life outcomes to better understand and improve long-term neurodevelopmental outcomes.
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